My name is Hope and my baby brother, Adam (age 4) was diagnosed with Acute Lymphoblastic Leukemia on January 1, 2011. This is the story of his journey to recovery.

Friday, December 23, 2011

scarfs blankets and hats +headbands

hello everybody this is hope with important news! i am selling scarfs, blankets hats flowers and headbands for half goes to Adam's medical bills and the other half goes to one of his dreams please comment on this post for the color size and style you would like thank you so very much!
                                                             from hope

Saturday, December 10, 2011

News!!!!!

hello everybody sorry I'm not on all the time but I don't have all the time in the world as the new spy kids do just got back a lot smarter than I was at least a week ago when I went on my trip to Utah. I drove up there with my aunt  and uncle and my two cousins then I flew down after some quality time with my friend who has been my longest non-family-friend. We have been friends since we were two and then she moved right after our second year of kindergarden. So on Tuesday evening at 4:56 I landed safely after seeing the very dirty SALT LAKE, the GRAND CANYON, and all the little cars and buildings that looked so TINY!!!!!!!!! so lots of love from Hope I wish you all a good day today tomorrow or whenever you read this goodbye!!!!!

Friday, September 2, 2011

Colorado Trip

               I'm soooooooooooooooo happy! we arived back home from colorado a few weeks ago and now i'm the president of my school

Tuesday, July 5, 2011

A small sacrifice

Let me tell you a story. When I was 4 I cut my hair myself. Not the best decision ever. I ended up with boy short hair and traumatized to ever have my hair cut short. So my hair has been very long ever since then (well, once it grew out.) I had heard of locks of love, and wasn't sure I could brave the cut. And then I met some of Adam's "cancer siblings" that he has met on his journey. He has a friend named Marissa who lost her hair and tells all the little girls going thru chemo not to be afraid, that bald is beautiful too.
And she's right. While I don't want to be bald, I can make a small sacrifice for another girl who doesn't have the choice. So this is what I did:
10 inches were measured

over 10 inches were cut
sister and cousins were happy about it too!
Bagged and ready for LocksofLove
I love my new haircut, and the trauma session is over. Finally! I still have just enough length to pull it up in a ponytail when we have 115degree weather!

You can watch the video on our FB page. Simply type in "Adam's Hope" in the search bar :)
THE END (for now...)

Wednesday, May 18, 2011

Tutu's for Adam


My mom is making tutu's to help with Adam's medical bills. You can see them on her facebook page Dreamweaver braids HERE . There is a link on the page to her blog where you can order the tutus.

She also has some with *bling* that you can see Right Here. We love seeing all the fun colors she puts together. Adam really likes them, and says "thats to help with my mediful so my doctors can make me all better" He's so cute!
Only six more days of  school! In some reasons I'm excited some I'm not . One of the reasons I'm sad is I love my teacher and I will miss her. One of the reasons I'm happy is because I'm going to do swimteam! Also, even though I'm going to be helping adam and my mom, I'm excited to go to the library this summer. I'm really excited because this summer my friend and I are going to publish a book we've been writing together. Half of the money from the book sales will go to adam's "mediful" bills.

Friday, April 29, 2011

 Hey guys I'm back! Well back to writing I mean. You'll Never guess what's happening tomorrow! The boutiques! I'm SOOOOOOO excited ! I could basically scream! So, please wish us luck as we try to help Adam's cause. Thanks so much for supporting me and my family! Bye-Bye! :>

Saturday, March 26, 2011

lately

So far in the past 3 weeks there have been 2 yard sales and a bake sale for Adam. All three have helped raise a lot of money for Adam's medical costs. I can finally put a dent in this pile of medical bills! There are so many good people that don't even know him, but were willing to donate items or even cash to help out. I have had my hands full of tulle making tutu's for a boutique here next month, as well as filling e-mail orders.
We had spring break so Hope played and cleaned and helped with Adam so much that she didn't blog. I can't begin to express the love that girl has for her siblings, and I am grateful, as her mother that she is willing to take on this blog as well. As far as Adam, he is playing like a normal kid again. You'd never know by watching him that his little immune system is so fragile. But the doctor says Adam is usually A-symptomatic so none of us ever really know something is amiss until it just shows up in routine bloodwork. It's a roller coaster, but for now, all the kids are smiling and playing and arguing (yep, we're normal)  like normal life has resumed.
-JL (AKA the mom)

Thursday, March 3, 2011

Fundraisers for Adam

There are two fundraisers to help with Adam's medical expenses this saturday, March 5, 2011. The Annual Lehi Days Rodeo on Horne and Lehi (just north of McKellips) starts early saturday and goes all day. There will be a bake sale set up at the house just east of the church on Lehi road, and all proceeds go to Adam's medical savings account.
Also Saturday morning from 7-noon aunt Kari's neighbor and friend will be doing a yard sale for Adam. There have been a lot of things donated so it should be a great sale. All proceeds also go to Adam's medical expenses. The yard sale is located at 18804 E. Superstition Dr. (queen creek, AZ 85242 if you want to mapquest it) in the Cortina housing development. The crossroads are Power and Germann. Go East on Germann 1/4 mile and turn right (south) on 188th st. Go down to the 2nd left go east on Kingbird. It curves around and then turn right on Superstition Dr. 18804 is at the end of the cul-de-sac.
We really appreciate all the hard work and donated items others have given to these fundraisers.
Adam has really low counts right now so he won't be able to do anything but stay home with mom this weekend, but he knows people are doing fun and nice things for him so he's happy.

Thursday, February 10, 2011

good thoughts

Hooray! My dad is coming home tomorrow and he got 100% at his training class! He is the smartest dad ever. I got to spend the whole day with my mom since she is home, too sick to be with Adam, and I had to stay home with the croup. Then my other little brother came home from school with a fever. Why are these good thoughts? Because Adam is actually safe in the hospital, away from all our sickness at home! They still haven't got his fevers to stop, so please keep praying (with us) for him to get rid of those fevers so he can be well and come home. Oh, and click on our Facebook page and "LIKE" it so you can see more photos and updates!!!!!!
Well that's all, Goodnight!

Tuesday, February 8, 2011

Creepy,Pies, And Little Brothers!

 Today at school went a little differently than normal, so many people just stared at me, like I had throw-up all over my face. One of my friends came up to me and said what's wrong?  I didn't know how she knew something was wrong. Itwas like she was a mind- reader!  So I told her all about how things went last night and she completely understood how I felt, she actually did, her little brother had to go to the hospital in the middle of the night. Her little brother had pnymonia, so it was really bad for her family. Right now my sister is leaning on my shoulder for me to comfort her. She is going to type something ( I have no clue what,) but she wants to tell you all something.
  Hey! Grace here, and I have something to tell you. My brother has Lukiemia a type of cancer. Wait-a-minute! Did Hope tell you already? Darn it I always miss out on the good stuff. My siblings (Hope and my annoying brother the other one, mr cheese) are going to make a pie with our grandma.
  "Hey!"
  "Crash!"
  "Sorry,We NEEEEEEED togo,bYYYYYYYYYYYYYEEEEEEEEEEEEEE!!!!!!!!!!!!!!

some days are tough

Hi everyone, sorry I wasn't seeming like my normal self, it's just sometimes you need to settle down by writing out all your emotions, and then reading them. So no if you were wondering, I am not okay.

OY!!!!!!!!

 Yesterday we had a whole episode of  " I don't want to go back to the hospital, they give me shots, and they hurt!" Also my sister just finished having a huge episode of " mommy wasn't here when we got home from school", and all that crap. So all in all my dad is having to go to school  worrying about his son being in the hospital and trying to study with all the DRAMA!!!!!!!!!!
  My life right now is not very peachy, my sister is worrying that it's her fault ( no matter what I tell her,) she thinks that it's her fault that Adam is in the hospital, just because she has a cold. So please remember, we love you all, but we're probobly not going to be so friendly.......

Sunday, February 6, 2011

The Beginning

This week has been craazy! Especially because I have to run around helping my mom with Adam, let me tell you he has so many needs you can't even get a 5 minutes rest. A few Fridays ago I stayed home to help with  him, I learned exactly what my mom has to do all day everyday. Right now I'm being bugged by " so called " friends , who couldn't care less about me, and more about how Adam is doing. My mom says I should wear a sign around my neck saying I'm "Hope", not "how is Adam?" Luckly I have a friend who's little brother has cancer too. She is a great friend who understands exactly what I'm going through,and is helping me cope. At least Adam is off of steroids, so he is back to his normal self !!!!!!!!!!!!!! The only bad thing is my dad left this morning for a whole week for work, so i'm pretty sure I'll be helping alot this week. But it's okay because i loooooooooooooooooove my mom, and my brother (*v*)

Whew!

Just a starter post from the mama, here. The past 6 weeks have been a major whirlwind around here! During the winter school break, our little Adam was ill with a fever and cough. I thought it was a virus and would pass in 7-10 days, but it didn't get better, and he became very pale. On Dec. 31, we took him to Urgent Care, where the doctor thought "virus" as well, but because of his pallor, took a quick blood test, where he discovered severe Anemia. He was promptly admitted to the Childrens hospital, where they wasted no time with further blood tests and a bone marrow biopsy. On New Years Day we were given the diagnosis of A.L.L Leukemia. He has a very good prognosis, but a long road ahead of him. After 12 days in the hospital, we came home, and had to turn our lives upside down as our other 3 children and us had to adjust in a big way. We made it through the first month of Chemo, called induction, where 98% of kids with this type of Leukemia achieve a remission by the 28th day. Adam has been a miracle and was in remission at day 14. That helped his bone marrow start crankin out good cells, which is great because he started feeling better and stronger and was able to play with his brother and 2 sisters more. He got a week off last week and on Monday will start phase 2 called Consolidation therapy. This will last 6 months or more, then he will move on to phase 3-maintenance chemo, which is less intense but will last 2-3 years to maintain remission.
All that being said, he has been such a trooper through all this and continues to take it all in stride, like he always has. He's my little ray of sunshine and Hope is such an Angel, I am so glad she wants to take on this project of keeping this blog up for all our family and friends. Thank you for the love and support and prayers on behalf of my little boy and our family. We feel strengthened each day because of it. Keep finding joy in the journey.
-Adam's mom